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NOFAS Colorado Forum
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http://community.livejournal.com/fas_talk/
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An Online
forum for parents, professionals and anyone interested in FASD to ask
questions and offer support. If you would like to ask a question or
make a comment and you are not familiar with forums or you dont want to
join, please respond to this link
http://community.livejournal.com/fas_talk/601.html?mode=reply
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On-Line List Serve
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ColoadoFAS@yahoo.groups.com
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For parents
only to exchange information and support
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The Source
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A Directory of Resources for Families
and Human Services Workers Concerned with Maternal Substance Abuse and
Children with Fetal Alcohol Spectrum Disorders
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http://www.cdphe.state.co.us/dc/CRCSN/sourcehome.html
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This is the place to find resources in
Colorado for families and service providers who are living with and working
with children with fetal alcohol spectrum disorders. It lists health care
providers, diagnostic clinics, therapists of all types, mental health
providers, substance abuse treatment providers, child care providers,
national web sites, and much, much more. The Source can be found at the
above web site. A limited number of printed copies are available. If you
have a special project, for which you need copies please contact April
Montgomery at april.Montgomery@state.co.us.
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Sewall Child Development Center
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Fetal Alcohol Syndrome Diagnostic Clinic
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1360 Vine Street
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Denver, CO 80206
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Tel: (303) 399-1800
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Fax: (303 399-1419
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Website: www.sewall.org
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Sewall Child Development Center has a multi-disciplinary
Diagnostic and Evaluation Clinic that includes a developmental
pediatrician trained in making a diagnosis of Fetal Alcohol Syndrome. Sewall
has focused on providing educational and therapeutic services to young
children and their families since 1980. Sewall's early intervention
services include special education, speech/language, and motor therapies;
developmental preschool, childcare, individual and family therapy, and
family support.
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The Fetal Alcohol/Alcohol Tobacco and
Other Drugs Prevention Outreach Project (FASPOP)
Colorado Area
Health Education Center (AHEC)
University of Colorado Health Sciences
Center
UCHSC at Fitzsimons
Colorado AHEC Program
P.O. Box 6508, Mail Stop F433
Aurora, CO 80045-0508Phone: 303-724-0327 or 1-866-474-1022 (Toll-free)
Fax: 303-724-0892
E-mail:
Pamela.Gillen@UCHSC.edu
Web site:
http://www.uchsc.edu/ahec/fas/about.htm
The Fetal Alcohol/Alcohol Tobacco and
Other Drugs (FAS/ATOD) Prevention Outreach Project (POP) is a collaborative
effort involving numerous community sectors and health, education, social
service, law enforcement and community groups. The program has a statewide
focus utilizing the Colorado AHEC system to provide program services to all
regions of the state.
The key strategies and goals for POP
include: 1) information - to increase overall awareness of the nature and
scope of the FAS/ATOD problem and effective strategies to prevent the
problem; 2) education - to increase the knowledge and skills of individuals
who work with high risk populations in the area of effective FAS/ATOD
prevention; 3) problem identification and referral - to increase FAS/ATOD
knowledge and problem identification and referral skills of health and human
service providers who work with high risk individuals; 4) community based-
to develop the capacity of local community groups to address FAS/ATOD issues
in their area; 5) environmental - to increase overall knowledge of effective
FAS/ATOD policies and help change current attitudes in the communities.
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Health Care Program for Children with Special Needs (HCP)
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Contact your local public health department or county nursing service
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or
call
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Children and Youth with Special Health Care Needs
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4300
Cherry Creek Drive South
Denver, CO 80246
(303) 692-2370
E-mail: cdphe.psdrequests@state.co.us
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Do you have concerns about your child's
health or development?
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Do you suspect or have you been told
that your child, or a child you know, has a chronic health related condition
including fetal alcohol spectrum disorders?
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The Children and Youth with Special
Health Care Needs program works to support children with special health
care needs and their families.
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They can help you find services and
resources such as diagnostic clinics, therapists, and community resources.
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These services are free and available to
all families with children in your community.
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ARC of Colorado
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8000 East Prentice Avenue
Suite D-1
Greenwood Village, CO 80111
Tel: 303.864.9334
Toll Free: 800.333.7690
Fax: 303.864.9330
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Email:
bbaesman@thearcofco.org
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www.thearcofco.org
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The ARC has made individuals with fetal
alcohol spectrum disorders and their families a population of special
interest. The Arc of Colorado advocates with others to create the conditions
under which all people with developmental disabilities experience
opportunities to develop competency and to make choices, to have good
relationships with family members and friends, to have respect and dignity,
and to be full participants in all community living. Their goal is to help
people with disabilities and their families become knowledgeable about
disabilities and the services and supports that are available. A variety of
other services may be provided by individual chapters.
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Child Find
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Local Public School Districts
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Call your local school district office
or
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the Colorado Department of Education at
303-866-6943
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to receive the name of the contact for
your area
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Child Find is one of the primary public
providers for developmental screening, assessment, and referral for children
who have or are suspected of having developmental delays. Child Find is
responsible for assessment and establishing eligibility for individuals from
birth to 21 years of age. The school system provides services beginning at
age 3. (They can tell you which program in your area serves children birth
through 3 years of age.) The exact services provided are dependent upon the
individual child’s needs, which may include but not be limited to
speech/language therapy and occupational therapy.
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The
primary role of the Child Find Team(s) is to locate, evaluate, and identify
children with special needs. Each school district decides how to handle this
and it may look different district-to-district.
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PEAK Parent Center
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Hotline: 1-800-284-0251
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Denver Office
1177 Grant Ave, Suite 104
Denver, CO 80203
phone:1-303-864-1900
Fax 1-303-864-0035
email:
outreach@peakparent.org
Parent Advisors: 1-800-284-0251 or
parentadvisor@peakparent.org
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Colorado Springs Office
611 North Weber, Suite 200
Colorado Springs, CO 80903
Phone: 719-531-9400
Fax 719-531-9452
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Hotline: 1-800-284-0251
e-mail:
info@peakparent.org
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Parent Advisors: 1-800-284-0251 or
parentadvisor@peakparent.org
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Information Center. It is a statewide organization of parents of children
with disabilities reaching out to assist other parents and professionals.
PEAK Parent Center's commitment is that children, youth, and adults with
disabilities lead rich, active lives and participate as full members of
their schools and communities. They also offer a very detailed calendar on
the Peak Parent Website at
http://www.peakparent.org/calendar.asp. The calendar can be searched by
dates, disability category or month.
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National Resources
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There has been an explosion of internet
resources and materials relating to fetal alcohol spectrum disorders over
the last few years. A few of the resources we have found to be most
valuable for families are mentioned below. Each of them leads to more
resources if you are interested in learning more.
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The Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
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http://www.fascenter.samhsa.gov/
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The Fetal Alcohol Spectrum Disorders (FASD)
Center for Excellence is a project of the Substance Abuse and Mental Health
Services Administration (SAMHSA). The FASD Center is a Federal initiative
devoted to preventing and treating FASD. The mission of the FASD Center for
Excellence is to facilitate the development and improvement of prevention,
treatment, and care systems in the United States by providing national
leadership and facilitating collaboration in the field. The Web site
provides information and
resources about FASD. For more help, you can
request training and technical assistance. It also provides
materials you can use to raise awareness about FASD.
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National Organization on Fetal
Alcohol Syndrome
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900 17th Street,
Northwest, Suite 910
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Washington, D.C. 20006
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Tel: (202) 785-4585 and 1-800-66-NOFAS
toll-free)
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Fax: (202) 466-6456
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E-mail:
information@nofas.org
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Web Site:
http:\\www.nofas.org
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NOFAS is committed to raising public
awareness about Fetal Alcohol Syndrome, the leading cause of mental
retardation, and seeks to implement innovative ideas in prevention,
education, intervention and advocacy. NOFAS takes a multicultural approach
to prevention and healing among individuals, families and communities. NOFAS
publishes brochures and a quarterly newsletter, “Notes on NOFAS”, which is
free. They also have a state-by-state resource directory developed in
conjunction with the Centers of Disease Control and Prevention that can be
purchased or can be requested from their own state. This comprehensive
listing of services contains valuable information for physicians, health
care workers, FAS program counselors, teachers, parents and others seeking
quick and accurate information NOFAS sponsors community seminars, and a
national conference; call for further details.
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Family Empowerment Network (FEN)
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UW Dept. of
Family Medicine
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777 South Mills Street
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Madison, WI. 53715
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Contact Person: Patricia Cameron
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Tel: (1- 800) 462-5254, 608 262-6590
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Fax: 608 265-2329
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Email:
fen@fammed.wisc.edu
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Website:
www.fammed.wics.edu
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A national organization serving families
affected by Fetal Alcohol Syndrome and Fetal Alcohol Effects and the
professionals who work with them. FEN does research and provides resource
materials, technical assistance, an 1-800 advocate phone line, educational
opportunities, an annual conference, and a teleconference series. Their
mission is to empower families through education. Their web site is
comprehensive and links to many other relevant web sites. It is a good
place to start.
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Centers for Disease Control and
Prevention (CDC)
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http://www.cdc.gov/ncbddd/fas/default.htm
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This federal agency monitors Health,
detects and investigates health problems, conducts research to enhance
prevention, and develops public policy to promote healthy behaviors
nationally and worldwide. CDC funds programs focusing on the prevention and
surveillance of FAS and on prevention of secondary disability in children
with prenatal fetal alcohol effects.
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Bill Dobovsky Memorial FASD Lending
Library
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Information for both professionals and
parents, including articles on FASD behavioral issues and FASD success
stories. It is run by a parent of an adult with FASD. Check out the online
library with books and materials on FASD available to parents free of
charge.
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http://come-over.to//FAS/booklend.htm
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Fetal Alcohol Syndrome Consultation,
Education and Training Services, Inc. (FASCETS)
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http://www.fascets.org
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FASCETS is a non-profit organization
whose objective in part is to support improved outcomes for those with FAS/ARND.
Diane Malbin is a nationally known trainer and educator on techniques that
work for individuals with FAS/FASD. She provides current information and
resources for supporting children, adolescents and adults with FAS/ARND, and
for professionals and agencies working with them.
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Fetal Alcohol Syndrome Handbook
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The University of South Dakota Center
for Disabilities
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http://www.usd.edu/cd
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A well written handbook that provides an
overview of Fetal Alcohol Syndrome and Fetal Alcohol Spectrum Disorders with
reference to other resources. It provides a readable starting place for
those just learning about FAS. The entire handbook can be downloaded and
printed.
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- http://come-over.to/FASCRC/
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University of Washington Fetal Alcohol Diagnostic Unit
http://depts.washington.edu/fadu/
Access to the Iceberg newsletter
http://www.fasiceberg.org/
FAS Bookshelf Inc
http://www.fasbookshelf.com/
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Books
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Suggested reading:
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Trying Differently Rather than Harder.
Diane Malbin, M.S.W. Contact FASCETS, Inc. at 503-621-1271 or
www.FASCETS.org.
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Fantastic Antone Succeeds
edited by Judith Kleinfeld and Siobhan Westcott, University of Alaska Press
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Fantastic Antone Grows Up
edited by Judith Kleinfeld and Siobhan Westcott, University
of Alaska Press
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FAS :Parent and Child
by Barbara A. Morris and Lyn Weiner
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Fetal Alcohol Syndrome: A Guide for
Families and Communities by Ann Streissguth
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